After years of medical issues, my son, Jacob, was diagnosed with palatal myoclonus, an involuntary tremor disorder. Over time he developed pain that was debilitating. His symptoms continued to progress to other parts of his body. He was homebound and incapable of learning in school. The medical profession had little to offer him, but we chose not to give up.
We tried everything we could find including medication, acupuncture, Ayurveda, changes in diet, Botox, surgeries, hypnotherapy, chiropractic manipulations, plus more. Some of our efforts failed and some succeeded—temporarily. Our search for a cure revealed he had more than one rare disease. There were other factors involved that caused his excruciating pain. With the help of strangers via social media, we diagnosed our son with Eagle’s syndrome. Subsequent events were inconceivable. When we thought we were finished, we started all over again.
This is a true story of perseverance, suffering, love, courage, and a passionate desire to cure an impossible disease. We lived one day at a time, one hour at a time, one moment at a time—until that day when our child was pain-free.
