The Hemiplegia Handbook

Until now there has been no book giving an overview of childhood hemiplegia for the people who are most affected by it – the children and young people themselves, and their parents, families, friends and teachers, as well as the professionals working with them on the management of their condition. This highly accessible guide provides this overview, giving the background to how and why hemiplegia happens in children, outlining the different approaches to therapy, and setting out guidance on how to support the child or young adult with hemiplegia. It is practically orientated, answering many of the questions posed by families, carers and members of the interdisciplinary team involved with the children. It will be invaluable both for parents and for medical and allied professionals. The chapters each cover one topic, moving from the causes, consequences and management of hemiplegia through the various life stages, including family life, education and growing up. Parents and professionals will dip into the handbook again and again as the child grows and his or her needs change. Readers will also find contact details for the many organizations that can provide more information or assistance. Throughout, the book is illustrated with the personal experiences of people – both parents and young people themselves – who have met the challenges of living with hemiplegia. The publication of this book is supported by HemiHelp (www.hemihelp.org.uk), a UK-based charity for people with hemiplegia and their families.

1. Introduction (LB) 1

2. Understanding the brain and movement (CF) 5

3. Causes of hemiplegia / hemiparesis (CF) 16

4. Possible clinical problems: their signs and symptoms (CF) 27

5. After diagnosis – what next? (LB) 38

6. Assessment and clinical management (CF) 53

7. Family life (LB) 80

8. Education (LB) 94

9. Adult life (LB) 119

10. The emotional impact of having a child with a disability (Claire Edwards) 139

Glossary of medical terms 148

Index 153